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«Center for Bioethics and Health Law 2011-2012 Annual Report FROM THE DIRECTOR This year’s Annual Report of the University of Pittsburgh Center for ...»

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University of Pittsburgh

Center for Bioethics and

Health Law

2011-2012 Annual Report

FROM THE DIRECTOR

This year’s Annual Report of the University of Pittsburgh Center for Bioethics and Health Law

chronicles the wide variety of activities of Center faculty and Center programs. Faculty members

garnered many honors and contributed important books and journal articles. Particularly noteworthy

are Judy Erlen’s Provost’s Award for Excellence in Mentoring and the award of Distinguished Nurse Researcher from the Eastern Nursing Research Society; Doug White’s receipt of the Grenvik Family Award for Ethics from the Society for Critical Care Medicine; and the publication of Mark Wicclair’s book, Conscientious Objection in Health Care: An Ethical Analysis.

It is with tremendous sadness that we bid farewell to two key faculty members of the Center – David Barnard and Mary Beth Happ. Befitting their accomplishments, each has been awarded a chaired professorship. David holds the Miles J. Edwards Chair in Professionalism and Comfort Care at Oregon Health Sciences University, and Mary Beth is a Distinguished Professor of Critical Care Research at Ohio State University. Each contributed enormously to the intellectual life of the Center, their departments, and the University of Pittsburgh as a whole. Their departure leaves a tremendous void in our programming and in our hearts. On the other side of the ledger, we welcome David Orenstein as a new Center faculty member, for which he became eligible on the successful defense of his thesis and completion of the Master of Arts in Bioethics.

Sincerely, Alan Meisel, JD Director, Center for Bioethics and Health Law Dickie, McCamey and Chilcote Professor of Bioethics and Professor of Law Center for Bioethics and Health Law

TABLE OF CONTENTS

Faculty News, Appointments, and Awards

Student News

Center Faculty

Affiliate Faculty

Research

Newly Funded Research

Ongoing Research

Other Grant Funded Projects

Publications

Editorial Board Memberships and Peer Reviews

Education

School of Medicine

Graduate School of Public Health

Arts and Sciences

School of Law

School of Engineering

Continuing Education and Outreach

Consortium Ethics Program (CEP) Year in Review: 2011-2012

Educational Offerings

Current Controversies in Medical Ethics Conference

The Center for Bioethics and Health Law Visiting Professor Program

Faculty Service

Faculty Service on State and National Boards and Committees

Center Faculty Lectures and Presentations

Local and Regional

National and International

Contributors to the Center’s Mission

–  –  –

FACULTY NEWS, APPOINTMENTS, AND AWARDS

Elizabeth Chaitin became the Director of Hospital Based Palliative Care for the Palliative and Supportive Institute (PSI) of UPMC.

Howard Degenholtz and his team, in collaboration with the Center for Organ Recovery and Education (CORE) developed a mobile game to educate people about the importance of registering to be an organ and tissue donor. Doctor Transplant, coming soon for the iPhone, is a fun and engaging way for people to learn what happens in a transplant center by integrating real world information into the actual design of the game, such as the need for dialysis while waiting for a kidney transplant, and the relative prevalence of organs (heart, lung, liver, kidney). The game links players together through Facebook, Twitter, and the Mogime social gaming network. To learn more about the game and about organ donation visit www.doctortransplant.org.

Judith Erlen received the Provost’s Award for Excellence in Mentoring and the award of Distinguished Nurse Researcher from the Eastern Nursing Research Society. She served as the Chair for the NIH review panel for applications received for the RFA: Technologies for Healthy Independent Living.

Gary Fischer was invited to be on a panel on “Patient-Centered Medical Home: Ethics, Accountability, and Teamwork” at the annual meeting of the American College of Physicians in April. He was also recognized as PAC 2012 Scholar at the Epic Physicians Advisory Council meeting.

John Mendeloff was appointed to the Board of Scientific Counselors of the National Institute of Occupational Safety and Health.

Lisa Parker was invited to speak at the annual meeting of the American College of Medical Genetics on the ethics of genetic testing for sport performance. She and Valerie B. Satkoske co-chaired the annual meeting of the Medical

Humanities Consortium, hosted at Children’s Hospital of Pittsburgh of UPMC. The theme was “Under Construction:

Hospitals, Healthcare, and the Medical Humanities.” Dr. Parker was also reappointed to the Expert Scientific Panel of eMERGE (Electronic Medical Record and Genomics) National Consortium and was asked to advise the National Newborn Screening Translational Research Network Ethics Working Group (funded by NICHD and administered by ACMG) on the management of secondary findings on multiplex platforms.

Douglas White received the Grenvik Family Award for Ethics from the Society for Critical Care Medicine.





Mark R. Wicclair published his book, Conscientious Objection in Health Care: An Ethical Analysis. He was also appointed a member of the Editorial Board of Cambridge Quarterly of Healthcare Ethics. He served as co-chair for the Committee on Research and Training Involving the Dead (CORID), a University of Pittsburgh Medical Center and University of Pittsburgh School of Medicine committee charged with reviewing research and training with the dead.

STUDENT NEWS

Mary Cooper successfully defended her thesis project entitled “We’re Having This Baby Tonight! Informed Consent and Medical Decisionmaking Regarding Oxytocin Augmentation.” Her committee was composed of Lisa Parker, Gabriella Gosman, and Mark Wicclair.

David Orenstein successfully defended his thesis project entitled “Educating the Pediatric Ethics Committee: A Feminist Approach.” His committee was composed of Lisa Parker, Alan Meisel, and Mark Wicclair.

Center for Bioethics and Health Law Page 3

CENTER FACULTY

Robert Arnold, MD is the Center’s Director of Clinical Training. He is a Professor in the Division of General Internal Medicine, Department of Medicine. In 1997, he formed the Section of Palliative Care and Medical Ethics, where he is Chief. Dr. Arnold is now the Chief Medical Officer of the Palliative and Supportive Institute, UPMC Health System. In 2000, Dr. Arnold was named the first Leo H. Creip Chair of Patient Care. This chair emphasizes the importance of the doctor-patient relationship, particularly at the end of life. He is the Director of the Institute for Doctor-Patient Communication and the Acting Director of the Institute to Enhance Palliative Care. He is clinically active in palliative care.

David Barnard, PhD, JD is a Professor of Medicine and Law at the University of Pittsburgh, where he is appointed in the Department of Medicine, the Law School, and the Center for Bioethics and Health Law. He is a member of the core faculty in the Global Health Track for the Internal Medicine Residency Program at the School of Medicine, and a member of the Steering Committee for the Interdisciplinary Curriculum in Global Health Training (INCIGHT), sponsored by the National Institutes of Health Fogarty International Center. At the School of Law, he is faculty advisor for the Global Health and Human Rights Track in the Health Law Certificate Program. He serves as the research ethics consultant for the Clinical and Translational Science Institute at the University of Pittsburgh. He is convener and coordinator for POWHER (Project on Women’s Health, Empowerment, and Rights). Before coming to the University of Pittsburgh in 1999, Dr. Barnard was University Professor of Humanities and Chairman of the Department of Humanities at the Pennsylvania State University College of Medicine.

Elizabeth Chaitin, MSW, MA, DHCE is the Director of Hospital Based Palliative Care for the Palliative and Supportive Institute of UPMC and Assistant Professor of Medicine at the University of Pittsburgh School of Medicine in the Division of General Medicine in the Section of Palliative Care and Medical Ethics. She is a member of the teaching faculty for the Internal Medicine and Family Practice Residency Programs of UPMC Shadyside, the Master of Arts in Bioethics Program, and the Consortium Ethics Program of the Center for Bioethics and Health Law. Dr. Chaitin has published extensively on ethical issues, palliative care, and communication during end-of-life care. Her research interests include measuring of the informed consent process, measuring patient competence assessment, effectiveness of interdisciplinary health care team communication. Dr. Chaitin holds membership in the Center for Bioethics and Health Law, Society for Health and Human Values, and the American Society for Law, Medicine and Ethics.

Howard Degenholtz, PhD is an Associate Professor of Health Policy and Management in the Graduate School of Public Health and the Center’s Associate Director for Research. He is also a core faculty member of the Center for Research on Health Care. Dr. Degenholtz’s research on long-term care focuses on an intervention to improve the quality of life of nursing home residents and the use of Health Information Technology in Long-Term Care. He is principal investigator on two federally funded projects to increase organ donation. Dr. Degenholtz is the Director of the Doctoral Program in Health Services Research and Policy in the Department of Health Policy and Management, and he teaches research methods. His areas of interest include health policy, long-term care, and aging.

Judith A. Erlen, PhD, RN, FAAN is Professor of Nursing and Chair of the Department of Health and Community Systems and the Director of the PhD Program in the School of Nursing. Her current research interests include medication regimen adherence, health related quality of life, and health related outcomes in patients with chronic disorders specifically patients with memory loss and their informal caregivers, HIV/AIDs, and Type 2 diabetes.

Gary Fischer, MD is an Associate Professor of Medicine in the Section of Palliative Care and Medical Ethics, with a secondary appointment in the Department of Biomedical Informatics, and is the Medical Director of Ambulatory Services for the University of Pittsburgh Physicians Division of General Internal Medicine. He also serves as Vice Chair of the Department of Medicine for Quality Improvement and Patient Safety and Associate Medical Director of the Ambulatory Electronic Health Record at the University of Pittsburgh Medical Center. Dr. Fischer teaches medical ethics and doctorpatient communication to medical students, residents and clinical fellows, and practicing health care professionals. His 2011–2012 Annual Report Page 4 current research interests include the effect of electronic communication between patients and physicians on health issues and the doctor-patient relationship, and ethical issues in quality improvement work.

Daniel E. Hall, MD, M.Div, MH.Sc is Assistant Professor of Surgery at the University of Pittsburgh and Core Investigator at the VA Center for Health Equity Research and Promotion. Dr. Hall is a general surgeon with training in both moral philosophy and theology interested in the ethics of surgery. His current research uses qualitative and quantitative methods to describe how patients and surgeons negotiate the process of informed consent for clinical surgery. He is also interested in how surgical residency shapes the character of surgeons-in-training and how best to form the virtues of character necessary for good surgical practice. Other research focuses on improving the quality and efficiency of IRB review throughout the VA healthcare system. He has published and lectured on ethics and the role religion plays in the context of clinical medicine. His clinical interests focus on both minimally invasive and emergency general surgery.

Mary Beth Happ, PhD is a Professor of Nursing in the Department of Acute/Tertiary Care and Medicine, Department of Critical Care Medicine. Dr. Happ’s research focuses on improving communications with non-speaking patients, and on end-of-life care and communication in acute and critical care settings. Dr. Happ is a Fellow of the American Academy of Nursing.

John Lyne, PhD is a Professor in the Department of Communications and a Resident Fellow of the Center for Philosophy of Science. He has written numerous articles and chapters on rhetoric of science, philosophy and rhetoric, and argumentation. Dr. Lyne is a recipient of the Provost’s Award for Excellence in Mentoring, for his successful track record of mentoring doctoral students. He teaches the graduate seminar in Philosophy of Medicine in the MA in Bioethics Program.

Alan Meisel, JD is the Dickie, McCamey & Chilcote Professor of Bioethics and Professor of Law, and the Director of the Center for Bioethics and Health Law. He is an authority on legal aspects of decision-making in the physician-patient relationship. His work has focused on both the theory and the practice of informed consent and the right to refuse medical treatment. He is the co-author of the third edition of, The Right to Die: The Law of End-of-Life Decisionmaking, the first edition of which won the 1989 American Association of Publishers’ award for the best book in its category. His other books include Informed Consent: Legal Theory and Clinical Practice (with Appelbaum and Lidz) and Informed Consent: A Study of Decisionmaking in Psychiatry (with Lidz, Roth, et al.). He was assistant director for legal studies on the President’s Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research and participated in the writing of the Commission’s reports on informed consent and forgoing life-sustaining treatment. He also served on the Ethics Working Group of the White House Task Force on Health Care Reform in 1993. Professor Meisel is a fellow of the Hastings Center.



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